Our goal is to simplify the information gathering and evaluating process. Our approach is to provide multiple perspectives from leading authorities and varies websites on autism related topics. This will provide our readers the opportunity to gather multiple viewpoints from a single location and form the best-educated decisions for their family’s needs.
Disclaimer: The Autism Resource Foundation provides general information to the autism community. The information comes from a variety of sources, and the Autism Resource Foundation does not independently verify any of it, nor does it necessarily reflect the views and/or opinions of the Autism Resource Foundation. Nothing on this website should be construed as medical advice. Always consult your doctor regarding the needs of your family.
Source: Autism Bedfordshire
For individuals with autism, their social impairments lead to:
- Difficulty in understanding what is happening around them
- An inability to predict what will happen
This creates considerable insecurity and anxiety on a daily basis, which is often expressed through various stress-reducing obsessive behaviours e.g. flapping, rocking or even challenging behaviors – full-blown tantrums, punching, biting, and kicking.
Because autism is not a visible physical disability, the general public is still quick to condemn “odd” behavior. They assume a child with A.S.C. is just being naughty or the parents are not controlling the child. Consequently, many parents avoid taking their children to public places rather than risk the behavior difficulties and resulting public judgment when their child becomes anxious. This causes not only the child with autism, but also any siblings, to become housebound and isolated, which has a profound effect on their social and emotional well being.
The impact of having A.S.C. for an individual means that they often experience failure in school, social and work situations. This leads to lack of confidence and low self-esteem. For many it leads to high anxiety, depression and mental health difficulties. Many people with A.S.C. are also very vulnerable to abuse because of their social deficit. Being bullied and taken advantage of by so-called “friends” is not unusual.
As adults, many find that they are misunderstood and some tragically break the law and commit crimes, often related to their lack of social understanding or imagination. For example, following a member of the public who they might be obsessed about becomes “stalking”. It is imperative that resources are made available to help adults on the spectrum to learn life skills and social communication skills in order to cope in society. Without this support they do become isolated and marginalized by society.
Caring for an autistic child or young adult can be a tremendous emotional, financial and physical strain. Parents feel judged by society, guilty that their child is missing out and not knowing how best to help them, which all takes a toll on the parents and siblings. For many families, at least one parent cannot work and often families break up under the stress of living with someone with autism, which puts a massive financial burden on them. Often, autistic people have disturbed sleep patterns and they need constant supervision which is physically exhausting. As they grow up, the children become too strong to handle if they throw a tantrum. Parents become isolated and depressed and many would reach breaking point without help.
Siblings, too, suffer from being in a very stressful environment, unable to socialize because of the difficulties at home, and unable to go out as a family. Some become carers for their autistic sibling in an effort to help their parents, and the strain and neglect is well documented to have long term psychological effects. Siblings desperately need time out away from their autistic brother or sister to enjoy the same sort of activities and social experiences as their peers.